PROGRESS
REPORT ON SUJIT KUMAR
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Sujit
when first discovered by Rotary Club of Suva Members
(Photo credit:Alison Batlin) |
On
November 30th 2002, members of the Rotary Club of Suva visited
the Old Peoples Home, where they saw Sujit Kumar for the
first time. He was in a corner of the Home where he was tied to
the wall at his bed, and an area of about 2 metres was his physical
environment. This is virtually where he lived for 22 years. He
would eat his food in a pecking fashion, from his mattress or
from the floor. He would do his toilet in the same area, and was
hosed down for bathing in this same area. He was so aggressive
and hence the staff could not manage anything else.
For
the next 6 months a member of the Rotary Club observed him, and
bought overseas specialists in to visit him – a neurologist,
a psychiatrist, special education teachers and counselors, to
ascertain his condition. He was on carbonzine for epileptic seizures.
From
July 1 2003, the Rotary Club of Suva commenced special care and
rehabilitation for him. A full time caretaker was employed by
the Club to work with Sujit on a behavioral modification programme.
The programme commenced at 7am and went through to 3pm with fine
and gross motor development activities. Personal habits such as
toilet training, proper eating, and brushing teeth were also included
in the programme. He is no longer tethered to his bed, and is
enjoying this freedom.
Sujit
progress particularly in his social and emotional development
has been remarkable. As of Sept 1 2004, Sujit is living in a private
home where his care and behavior can be more closely monitored.
As
of Oct 1 2004, the Fiji School of Medicine has taken Sujit on
as a case study. A different medication, Ethosuximide, has been
prescribed with the hope that by controlling his small seizures,
he will have an increased learning capacity. After being on this
drug for some 16 days, we are still observing his behavior. He
is suffering many of the side effects such as loss of appetite
and often reverts to his previous aggressive behavior.
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September
2003 – Sujit in the early days of learning |
Sujit
working with Molly Drauna. |
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2005
The year Sujit became known to the world in the documentary ”Saving
a Wild Boy”
Sujit took on a new form of independence - making choices
on a daily basis about what he ate and what he did!
| Saving
a Wild Boy |
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Often
it is not until you stop and look back that you see progress.
From October 2004 Sujit began living in my home. He has found
love and security for the first time in his life. More importantly
he has also learnt to give love. This past year we have had so
many blessings, so many new experiences that it is hard to keep
up with the diary notes you see below.
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What
a smile! |
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As
we teach Sujit new things I am reminded of the Bible verse in
Isaiah, Chapter 28, verse 10: "Do and do, do and do, rule
on rule, rule on rule; a little here, a little there."
Patterning is a very crucial behaviour in Sujit's learning. An
example of this is when Sujit got his banana and his plate and
sits down and waits for you to peel it. Now he gets the plate
then the banana, puts the banana on the plate and waits - this
is great patterning behaviour which is so good because it shows
me that he can pattern when it comes to toileting - that he will
pull his pants down then go to the toilet then pull his pants
up again, wash hands etc. At this stage, he is still going to
the toilet and sitting down without pulling his pants down first,
so we have to work with him on this 'patterning' exercise.
In
this past year Sujit has discovered what a reflection is. He looks
in the mirror and will see the reflection of myself looking at
him. Then he turns his head and looks around at me. He is doing
this more often as he especially likes the mirror and can sit
for ages looking in it, often kissing himself. The mirror interaction
is indicative of Sujit's move onto 'another level' - a level where
he is recognising his own image - which a mirror in fact reflects.
He obviously likes what he sees and will seek out mirrors just
to see his own reflection, even to my small vanity mirror.
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Sujit
gives and takes a kiss. |
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Sujit knows very well now how to command attention from me, just
as any toddler does - he is very loving towards me but can then
get difficult if there is too much intrusion into our 'special'
relationship', be it people coming to visit or even my working
on the computer too much - he will come right up and sit himself
on the keyboard, no words, just a big grin. So now for my diary
notes:
Excerpts
about Sujit from Elizabeth's diary notes since August 2005:
19/08/05:
Sujit continues to do things - yesterday at church, he loves the
music but as soon as worship is over he is up and out and would
rather be with the Deacons at the back of the church or go back
and wait in the car. We are now on a very firm discipline regime
with him as he is just being a toddler at times with his exerting
his will in the wrong direction. I met with his carers this morning
and we must decide what we are to do to maintain consistency in
our discipline. He is so much more 'knowing' these days - it is
hard as we have to remember that
he is a toddler/man going through the formative years again but
being socialised as a human being this time around, rather than
as a chicken.
24/08/05:
Sujit is so very loving with me and just comes for hugs and kisses
all the time. He is getting so much more relaxed and his face
is changing with so much peace upon it. This 'love' thing is just
so amazing. I really should have a little movie camera to shoot
stuff as Sujit is changing so rapidly. This week since I have
been back he has been so happy and really attentive.
27/08/05:
This week Sujit has been the best he has ever been! He keeps on
coming over to me for a hug and has had a perpetual smile on his
face. I know he recognises me as his main caregiver as he continually
has his eyes on me and will start 'doing things' when I am not
giving him the attention he desires. He makes me laugh! It is
such a joy for me.
04/09/05: The first time Sujit went to the pantry,
took the lid off the biscuit tin, and then ate the biscuit.
14/09/05:
Sujit is just at the 'looking' stage with the Wendy Pye “Magic
Box” tapes. He has the concentration of a three year old
but the books are his favourite - he is just getting to realise
what a book is - that the pages turn!
25/09/05:
For the first time Sujit became aware of Charlie our King Charles
Spaniel dog. Sujit accidentally walked into Charlie who then growled
and wouldn’t let him the through the door. Sujit didn’t
know what to do. He had to confront a problem – how could
he get through the door past Charlie?
02/10/05:
Some friends came for lunch. Sujit offered a girl some pineapple.
She didn’t want the pineapple and this made Sujit a bit
cross.
09/10/05:
Sujit was very pleased to see me after we returned from our time
with friends in the Yasawas Islands - he just knows my every move.
When I get dressed up to go out now, he starts heading for the
door in order to tag along too!
12/10/05:
Sujit - he definitely knows the difference between right and wrong.
Last night we were all eating fruit cake and I got talking to
my brother and without noticing, Sujit had finished his piece
and decided he wanted more so went right behind my back to take
another piece and just at that time, I turned around and he withdrew
his hand from the piece with a big grin on his face! He will laugh
with me now, so is starting to imitate which is so wonderful to
see. On Monday it was a public holiday here so I took Simon Peter
and Sujit out for a picnic. We went into the shallow water, knee
deep, and walked about half a km. As we were walking I started
to spray splash Sujit, and before too long he started to spray
splash me back – another great example of imitating. So
he has started to learn my imitation – such an excellent
move forward. Mind you he is not imitating all our 'proper' behaviour,
but hopefully he will start imitating more and more - he has imitated
behaviour before - unfortunately it was chicken behaviour. He
refuses to go to bed until SP goes to bed, and then he will go
down no sweat! A new activity, which I might have mentioned already,
is that he loves to finger paint. We put paper on the wall and
give him a couple of colours and he just stands there and paints,
first splashing the paint on and then using his full hand to spread
the paint. I do wish that I could get this on film as you can
see the joy on his face when he is involved with this painting
activity. I haven't even got my digital camera right now so it
is a pity. Yes, he still gets a move on to the door when he sees
me getting dressed and ready to leave as he loves coming out in
the car. Sujit is unique and it will be interesting to see how
far he can go. He is being very naughty to-day, choosing to be
most un-cooperative because we are all very busy working on repairs
to my building - my brother leaves tomorrow so we can be back
to normal!
15/10/05:
Sujit has been absolutely a charm today. He has been following
me around from room to room, coming to sit on my desk as I use
the computer, goes to the kitchen, finds a plate, puts it in 'his
place' and then gets a banana and puts it on his plate ready for
me to help him peel it! He has been making a lot of sound to-day,
nothing constructive but good sound and he seems to know it has
an effect as I turned around to look at him when he made the sound,
then turned away so he made the sound again to get my attention.
Very interesting - you see there is something new everyday. Early
this morning I planned to walk with SP to get the newspapers,
so we all went downstairs. Sujit was very excited but when he
realised we were going to be WALKING instead of taking the car,
he started to exert his will and walked very reluctantly then
didn't want to walk any further. When I said 'do you want to go
by CAR' and pointed to the car which was around 100 metres away
by this, he just grinned, turned around and we walked happily
back to the car and got in. Sujit definitely now knows what he
wants - and what he doesn't want!! Did I tell you he turned on
a tap by himself the other day? SP and I pray in agreement for
him everyday that he will be more and more like us. We have the
faith that he will be healed of the damage his traumatic environment
has had on him.
16/10/05: This morning I was lying in bed - first SP
came in and sat with me then Sujit came in and sat with me, then
proceeded to pile things on me that he could find around the room.
It was very funny as he has never done this before. Each thing
he would put on me he would laugh and then go find something else
to pile on me. I had SP take a photo.
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November
2005 - Sujit piling things on top of me |
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How
interesting it is to observe someone like Sujit who is almost
completely unsocialised/raw but he is making an unsophisticated
attempt to develop relationships with those around him. We are
taught from an early age how to interact appropriately but he
hasn't been taught this so piling things on me this morning is
HIS way, like following me around from room to room (like a duck
after its mother!), like sitting on my desk while I use the computer,
and like getting right into my face to get eye contact, and so
it goes on. Really makes me laugh but it is so interesting to
observe this very raw behaviour and is indicative of the need
for closeness to another human being - as if we are really hard-wired.
It is a very special experience for me
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Joe,
Ana, (Sujit’s daily caregivers) Sujit, Navi and Eleni.
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17/10/05:
Sujit is progressing before my very eyes and at times one really
think ahead as to how to handle this 'new kid’. He is exerting
his independence so much and he seems to be trying very hard to
communicate non-verbally - unfortunately when he doesn't want
something it is usually a dramatic NO - something I have to find
a suitable way of 'curbing'. He loves his morning gross motor
activities but not so keen on 'school' except for a few activities
like finger painting so we are going to have to work out how we
can do the fine motor development exercises (much needed for brain
development - as a the gross motor activities) so he enjoys, but
is challenged by all the activities.
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Elizabeth,
Sujit, Ana and friends |
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05/11/05:
The funniest of this week was the way Sujit ran toward me when
he was coming back after playing in the field across the road
and down the street abet - he was so fast and lifting his knees
up high as he ran with a big grin on his face. Linda witnessed
this but alas she did not have her camera on him. He is happiest
when he is around me - preferably alone with my undivided attention.
Simon Peter is so sweet about Sujit's need to have my attention
and is prepared to wait until Sujit goes to bed before he settles
down with me on the sofa, for a chat about the day's events or
to read a book. SP is the sweetest, caring child I have ever known!
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| Simon
Peter and Charlie |
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19/11/05:
The day Sujit cried for the first time.
I am trying to keep off the computer this weekend to spend time
with the boys. Ana and Joe don't work on the weekend. Simon Peter
is sitting next to me and he is reading what I am writing and
he thinks his reading is getting much better. He is going to put
some words in his dictionary after this from a letter that Aunty
Pauline wrote to him. My printer wasn't working and SP managed
to find out what the problem is, so he is more than a pretty little
face. He is such a big help to me. We had a big problem with our
darling Sujit this morning. I had put some cream on his body as
he had a rash. Unfortunately, he rubbed it and then sadly he got
some of it in his eyes, so we had to wash his eyes with water
and then put drops in them. It must have hurt so much that he
was sobbing, in a real, normal cry and making much sound - which
I had never heard before - so it wasn't an emotional cry but a
cry of pain. It was interesting that he could be comforted and
somehow understood that all that I was trying to do for him, eased
the pain. At first he struggled when I tried to put eye drops
in his eyes as I think he thought we were going to put more 'nasty
stuff' in his eyes, rather than drops to make it better. But then
finally he realised that this was easing his pain. SP was a big,
big help to me. Sujit is fine now and laughing and loving us (but
sleeping right now!) This boy has had to suffer in silence all
these years so perhaps now he is finding a way to express his
distress. The reason a baby is able to cry out and be heard is
as a form of protection. Sujit has never had this protection,
or so it seems.
He is starting to show his emotions very clearly now - this is
another story, where love, anger, jealousy, mischievous behaviour
is coming out in a more normal kind of way.
20/11/05: Sujit is just learning colours now
- sort of. He continues to love his finger painting. In fact he
wants to paint everything now - with water. As soon as he sees
water - he gets his fingers wet and 'paints' anything around!
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November
2005 – Deepak Rathod watches Sujit finger-painting. |
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27/11/05: Both boys are resting right now. We
had the most beautiful day yesterday with my niece, her friends
and a guy that works for her. So the seven of us swam in the pool.
Sujit enjoyed it as you saw in the documentary “Saving a
Wild Boy”. Then we sat and talked. Sujit was so good, being
friendly and smiling to everyone, coming and sitting on my lap
etc. It is so hard to catch these experiences (unless you are
hot-shot Linda Gollan) as when I reach for the camera - the mood
changes somewhat. It is great however to have the video camera
nearby and we were able to get something recorded. (Sony NZ kindly
donated a digital video camera so that I wouldn’t miss recording
Sujit’s progress.)
We are off to church very soon but I am just enjoying the quiet
moment so will go now and do some reading.
05/12/05: A special day today! Sujit was invited
to the Prime Minister’s Prayer Breakfast.
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Monday
5th December 2005: Elizabeth and Sujit
with Fijian Prime Minister Hon. Laisenia Qarase |
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08/12/05:
Sujit kisses Elizabeth for the first time.
I
am bursting up here in Fiji land!! Every time I open an email
I burst into boo hoos! The generosity (in response to PROJECT
HAPPY HOME’ ) is overwhelming - the trust people have. But
we know we serve a big God and He is just demonstrating a little
of His power to be in control of all things, even the hairs on
our head and the tears that fall down our cheeks! Far out - such
an awesome road we are all on.
Sujit gave me a big kiss on the cheek yesterday! - He usually
kisses himself in the mirror but yesterday it was MY
turn!! He has been very mischievous and has definitely claimed
a huge part of the hearts of those he meets.
Sujit
is totally IN LOVE - or so it seems - must be such a wonderful
feeling for him to know that he is totally in a safe and loving
environment. He gets excited now and chases - literally runs after
me, down the street or wherever, so much so that I have to watch
out for him coming! Of course he doesn't do it on cue and never
when the camera is rolling but Simon Peter, Joe, Ana and I share
these lovely, wonderful experiences with this very raw man-child.
We all love him very much - and he now knows it!
12/12/05:
Yesterday at church he did not want to go into church so he sat
down on the ground and just refused to get up. I then said, "Would
you like to sit in the van?" He promptly got up and walked
nicely over to the van and got in.
Again I had to discipline him at home for pushing his food away
(as he shouldn't do) - he waited awhile and then wanted to come
and sit on my knee - he was sorry!!
25/12/05 - Christmas Day:
We
had a very quiet Christmas just visiting friends that we have
made over the past year. It was difficult taking our Christmas
photos as all Sujit wanted to do was play with Simon Peter. It
is wonderful to see how these two boys have become such great
'mates' - Sujit seems to adore Simon Peter and will respond very
well to him with big grins and reaching out at him. Ana and Joe
took the time off to be with their families so it was just the
three of us.
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The
three of us - Christmas 2005.Taking photos with the timer
is not easy but lots of fun |
We are so looking forward to January which will be a hectic month
because of the refurbishment of 17 Richards Rd - ‘PROJECT
HAPPY HOME’ .We are having lots of rest as we know it is
going to be so busy with so many wonderful people coming in from
abroad to help fix up this house and get it ready for the boys
to move in. All the plans have been set, so now it is just go,
go, go!
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Elizabeth
and Simon Peter |
“Great
mates”- Sujit and Simon Peter. |
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